I found out I had NF1 when I was 14 years old. This happened only because I developed a few strange lumps under my skin on my forehead, one doctor thought it may be fatty tissue, and another doctor thought he would remove them and just to be sure. 16 years, and 6 surgies later I am a semi healthy 32 year. I can’t say the journey was easy, but it was a lot easier then so many other peoples that I guess I feel lucky. Continue Reading →
