Whether you are an adult living with NF, a parent, grandparent, or friend of a child with NF, we need your support now more than ever to continue providing the unique services and programs to those affected with neurofibromatosis.
Donations to the Annual Appeal enable the BCNF to move forward fulfilling the need for education, support and empowerment opportunities to the community battling this genetic disorder.CONTINUE READING →
We are currently seeking individuals to serve as board members. We encourage applications from all people whether or not they live with NF. We also encourage applications from outside Metro Vancouver, as our mandate is provincial in scope.
While we are interested in a variety of skills and experiences, so please share this opportunity with your networks.CONTINUE READING →
Global News is featuring a story about a couple in Kelowna speaking up about Neurofibromatois. Watch the video on the Global website.CONTINUE READING →
We’re pleased to announce the Parent’s Guide to Learning Disabilities Associated with Neurofibromatosis Type 1 has been updated and re-published – and is now available for purchase online.CONTINUE READING →
For those of you who currently receive our Inspire magazine, the faces of Andréa Lyons and her daughter Dani will be familiar. Dani is a four-year-old girl who lives each day to the fullest and enjoys every minute of every day despite being diagnosed last year with Neurofibromatosis (NF1). Dani currently has many of the […]CONTINUE READING →
Our logo is different but our mission remains the same. We are excited to unveil a new logo for the BCNF. As with any business or charity, the logo represents what the company stands for. The Board of Directors wanted a new fresh design which the public would associate with an energetic, caring and fun […]CONTINUE READING →
Calling all Youth age 16-30 in the NF Community! Join us March 29th, 2014 in Vancouver BC Each person’s journey with NF is varied, yet one of the common challenges young adults facing in the NF community is the transition from teenage years into adulthood. The community of natural supports begins to shift as people […]CONTINUE READING →
Thank You! A big shout out and thank you to all our team members and donors who participated in the 2013 Vancouver Scotiabank Charity Challenge! This year’s event raised $15,616.61!! Start planning for 2014 Join the Run for NF Team as we walk or run in Scotiabank Vancouver Half Marathon and 5km walk from UBC […]CONTINUE READING →
Congratulation to our team of esteemed NF researchers who had their research published in the American Journal of Medical Genetics Part A and many thanks to all the BC families who took part in the study. You can view the research (free, registration required) on MDLinx.CONTINUE READING →