The BCNF and founder Paul Ralphs were recently featured in the Oak Bay News.
Thank you to all our donors and guests for supporting the 16th annual Jeans for Genes Dinner and Auction on March 9th. With the help of Ed Bain from 100.3 The Q and the professional auctioneer services of Scott Meliville, from the Melville Group, vital funds were raised for summer camp scholarships and other programs. We thank all our donors and supporters and ask that you support them by visiting their businesses.
Swing Into Spring Fundraiser Dance
Proceeds to BCNF, Amnesty International and Send Frank to Swing Camp
Saturday, April 6, 7:30-11:30pm
Oddfellows Hall, 1443 West 8th Ave. Vancouver
For tickets or more info, please contact Dave Myles (604-612-4688 or Yvonne Green (604-677-0023)
Join the Run for NF Team as we walk or run in Scotiabank Vancouver Half Marathon and 5km walk from UBC to Stanley Park on Sunday, June 23rd. Commit to fundraising a minimum of $200 and we will pay your registration fee. Recruit your family and friends for this fun event in one of the most beautiful cities in Canada!
I would like to wish you a Happy New year and hope 2013 finds you well. It is hard to believe another year is upon us. It is always interesting to reflect on the previous year and then look forward to our hopes and dreams of 2013. The BCNF board has been doing that. We have many new and ongoing projects that, if successful, will help BCNF move forward.
I would like to let our membership, supporters and friends know that we continue to do what we can do to support families touched by NF. Whether its providing information over the phone, sending the youth to camp, or just providing an ear to listen to a family in distress, we are here. These vital services that we offer however, do come at a price.
Full and Partial Tuition and Travel Scholarships are now available
Saturday, July 13 – Friday, July 19, 2013
Come join us for a week of fun, friends and shared experiences at the annual Children’s Tumor Foundation’s Summer Camp in Emigration Canyon, Utah, just outside Salt Lake City. The camp, a state-of-the-art facility catering to those with special needs, provides a wide array of recreational facilities on-site, and can accommodate all ages and abilities.
Thank you to everyone who stopped by the BCNF booth at the Orchard Mall in Kelowna last Saturday. It was great to meet some new families. And a big heartfelt thank you to all our volunteers who hosted the display. See you next year!
One of the local families involved in the event were featured in the Kelowna News – read the article here.
This cartoon comes to us from cartoonist Fabio Coala of Portugal. The translation might not be perfect, but the sentiment certainly is – enjoy!
Thank you to our presenter Dr. Jan Friedman and our participants for joining in on the BCNF’s first webinar.
Dr. Friedman’s presentation presented some great new research information along with the results of their research of using full body MRIs in NF1 If you weren’t able to join us for the seminar you can view the webinar here.
Please note: The company that hosted the webinar is aware that Dr. Friedman’s screen sharing is not showing during the recording playback and their development team is working on this to resolve the issue as fast as possible.
NBC’s TODAY Show recently ran a story about Blake Robinson, an 11-year-old with NF, and his involvement with Racing4Research. Watch the video.
We are so pleased to share the news that BCNF board member and medical student Suzana Mitrovic Gilmour has been awarded the 2011 Patricia Baird Prize.
The award is given to a medical student involved in the field of genetics. Suzana won the prize for her worthy contributions to the Foundation during medical school. Over the last three years Suzana has been involved in many projects at the BCNF, most notably in assisting with the production of the Support Through Technology online videos. Suzana is currently also working on a downloadable GP Fact Sheet that families can take to their doctor which outlines the management of NF.
Thanks, Suzana, for all your contributions to the NF community!
Want to support the BCNF in your own community? Then why not take to the streets and host a fun, family friendly fundraising event, the new Walk for NF. A guide to organizing a walk is available to make the event easy to implement and you will be supported through the process by the staff.
Money raised will be used to support NF research and provide services to support those battling NF, and their families. If you want to learn more, contact the office today and we will send you a complete kit to hosting a walk in your community.