The 16th annual Jeans for Genes auction is set for April 21st at the Vancouver Lawn Tennis and Badminton club. This a fun fundraising event to benefit children and youth with NF. Enjoy delicious food and bid on exciting items including a one week stay in Maui. Continue Reading →
Until March 17th, 2012, we are holding a raffle for some great prizes to help us fund our programs. Tickets are only $2. If you would like to purchase tickets, please contact us today!
NBC’s TODAY Show recently ran a story about Blake Robinson, an 11-year-old with NF, and his involvement with Racing4Research. Watch the video.
The BCNF has kicked off its annual holiday campaign and we hope you will be help us reach this year’s target of $25,000.
There are easy ways to give and they all make a difference to ensure we continue to bring quality programming to the NF community.
Why not make a donation in honour of a friend or family member or make a monthly donation and become and NF Champion. We are counting on your support.
We are pleased to welcome Tim Golumbia in his new role as President!
Continue Reading →
NF Canada has published a book that sheds light on the intimate struggle of living with neurofibromatosis. Disgruntled Body, a book translated from an original French text, Corps chagrin, chronicles the journey of Vivianne as she battles the disorder neurofibromatosis type 1. Continue Reading →
Educational Ambassadors are needed to host the BCNF information table at the 3rd Annual Community and Patient Fair for Health Professional Education at the University of BC.
The event is on Wednesday, November 2nd. Volunteers are needed for three hour shifts from 10:30am-1:30pm and 1:30-4:30pm.
This is a great opportunity to educate new doctors about NF from the patient’s perspective. If you enjoy talking with the public and are keen to make a difference we would love to have you get involved. For more information email info@bcnf.bc.ca
We are so pleased to share the news that BCNF board member and medical student Suzana Mitrovic Gilmour has been awarded the 2011 Patricia Baird Prize.
The award is given to a medical student involved in the field of genetics. Suzana won the prize for her worthy contributions to the Foundation during medical school. Over the last three years Suzana has been involved in many projects at the BCNF, most notably in assisting with the production of the Support Through Technology online videos. Suzana is currently also working on a downloadable GP Fact Sheet that families can take to their doctor which outlines the management of NF.
Thanks, Suzana, for all your contributions to the NF community!
St. John’s College, 2111 Lower Mall, University of BC Campus
Don’t miss this year’s symposium – we’ve got a fantastic lineup of speakers. Registration has been extended, so make sure you reserve your seats today! Continue Reading →
Thank you to everyone who shared their personal stories of living with NF this summer. Submissions are now closed.
We are pleased to announce the gift card winners who will receive either an itunes or Chapters gift card along with an admission to the 2011 NF1 Symposium. They are:
But just because the contest is closed doesn’t mean we don’t want your stories. Personal submissions are welcome anytime to both the BCNF website and newsletter. You can view all of the stories in our Writing section.
Congratulations to all our writers!
Copyright 2011 BCNF | The BCNF is a registered, non-profit charitable organization (#13104 1352 RR0001) | Members of the media, please access our dedicated resource area.
