Facing a life with Neurofibromatosis may have you feeling anxious, scared and filled with questions. The most important thing to keep in mind is that you are not alone. There are nearly 10,000 Canadians who, just like you, are bravely dealing with the challenges of NF. While every case is different, most NF patients are leading full, rewarding lives – raising families, progressing in their careers and traveling the world.
The BCNF is looking for photos of children and adults with NF experiencing the pleasant moments of daily living with family, friends or individually. Our emphasis is on portraying people with NF in their communities enjoying life. These will be added to the newsletter and website as Life with NF!
Send us your photos and we will enter you to win a BCNF mug with your photo on it! You will be provided one entry with each photo sent. One prize will be awarded with every issue of iNFo.
Please send us your photos, either digitally or in hard copy. Do not send in your originals as we cannot return them to you. Please mail duplicates only.
Keep in mind, when you submit your photos to BCNF, you are giving us permission to use them to increase awareness of Neurofibromatosis in our communities by way of our newsletter, brochures or website. These photos will not be used commercially. We will not name the individuals or the photographer. We will not be able to use every photo submitted, but we thank you all for your help in developing BCNF’s newsletters, brochures and website to reflect our diverse communities throughout BC.
Please contact us for details on sending your files electronically, or mail a duplicate photo to:
The BCNF
Box 5339
Victoria, BC V8X 6S4
We've put together many stories from individuals and parents living with NF, including an ongoing series of video interviews. Share these journeys and understand more about living with NF. View Stories
It's important to remember that you're not alone. There are conversations happening every day and blogs, Facebook and Twitter are just some of the ways you can connect with others in the community. Find out more
There are a number of events happening throughout the year, from camps to conferences, picnics to fundraisers. Have a look at some of our past events. View Past Events