We have a number of useful resources available for a nominal fee (to cover expenses). If you would like to order any of the materials listed on this page, please download and fill out the Order Form.
NEW! Notes from an NF2 Prenatal Diagnosis Webinar by Ursula Durand
Urusla Durland is a genetic counselor at the Pacific Centre for Reproductive Medicine. Her primary focus is First Trimester Screening and she also provides genetic counseling to couples going through infertility care and treatments. She has kindly provided the notes from her webinar, which can be downloaded here.
A Parent’s Guide to the Learning Disabilities Associated with Neurofibromatosis Type 1
This guide is designed to act as a resource for parents of children with both NF1 and learning disabilities – at all school ages. Whether your child is just entering kindergarten, or is into his/her high school years, you will find relevant material to address his/her educational needs in this guide.
Youth Guide to Understanding Neurofibromatosis
This 13 page resource was created with the help of young people and answers frequently asked questions about NF. This brochure will assist parents and youth alike in better understanding living with NF.
NF affects everyone differently and whether you have NF, are a parent, a relative or a friend of someone with NF, your story is unique. However, it can be very helpful to read the accounts of how others have dealt with the disorder. These are stories from real people with no sugar-coating and we hope you are inspired and encouraged by these courageous individuals who each face NF in their own way. Download the free PDF (1 mb)
This video features children ages 9 to 19 sharing their experiences on living with NF produced for children who are newly diagnosed with NF and for children experiencing new symptoms. Watch the preview:
BCNF General Information Brochure
BCNF Brochure Translations
These two books come recommended by BCNF member Betty Hersey:
Who Says It Has to Be Fair?
Theda Schott , 2006, Publishamerica, LLLP
This easy-to-read book chronicles the difficult journey of Theda’s son from infancy, when he was diagnosed with NF1, through his teen years. This book discusses the many manifestations NF1 may take. Her son, unfortunately, experienced quite a few of them. Theda also includes how NF1 can affect speech, learning and behaviour. She emphasizes the importance of the need to work towards awareness of this condition. Theda knows what it means to live with the anticipation of what the journey with NF1 might bring next to her family. This book is a worthwhile read!
Dina Roberts, 2003, iUniverse, Inc.
Gabrielle is a young girl living with NF1. She inherited the condition from her father. Although she does not have a severe case of NF1, Gabrielle is very aware of how the condition affects her body and what a prospective boyfriend may feel about it when he learns about it. Young people would enjoy reading this book to find out what happens when Gabrielle meets James and how her world takes a change for the better!
These books are available on loan from the BCNF or can be purchased through your local bookseller or online vendors.