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	<title>British Columbia Neurofibromatosis Foundation</title>
	<atom:link href="http://www.bcnf.bc.ca/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.bcnf.bc.ca</link>
	<description>Together we can make a difference!</description>
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		<title>Visit us in Kelowna!</title>
		<link>http://www.bcnf.bc.ca/events/visit-us-in-kelowna/</link>
		<comments>http://www.bcnf.bc.ca/events/visit-us-in-kelowna/#comments</comments>
		<pubDate>Wed, 09 May 2012 21:07:48 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[Events]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1240</guid>
		<description><![CDATA[Come check out the BCNF booth at the Orchard Park Shopping Center in Kelowna on Saturday, May 12th. This event is hosted by the amazing volunteers from the Kelowna/Westbank communities and they would love for you to drop by. Come share your story and get involved!]]></description>
			<content:encoded><![CDATA[<p>Come check out the BCNF booth at the Orchard Park Shopping Center in Kelowna on Saturday, May 12th. This event is hosted by the amazing volunteers from the Kelowna/Westbank communities and they would love for you to drop by. Come share your story and get involved!</p>
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		<title>CANCELLED: NF2  Information Day</title>
		<link>http://www.bcnf.bc.ca/events/nf2-information-day/</link>
		<comments>http://www.bcnf.bc.ca/events/nf2-information-day/#comments</comments>
		<pubDate>Wed, 09 May 2012 14:14:57 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[Events]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1217</guid>
		<description><![CDATA[Presented in partnership with our friends at the Friedman Lab, University of BC. Join us for a rare opportunity to learn about NF2 and emerging treatments from world-renowned experts, including Dr. Gareth Evans (Manchester UK), Dr. Friedman (Vancouver, BC) and Jennifer Gait (Victoria, BC). CANCELED DUE TO LACK OF INTEREST. Friday, June 15th, 2012 10 [...]]]></description>
			<content:encoded><![CDATA[<p><em>Presented in partnership with our friends at the Friedman Lab, University of BC.</em></p>
<p>Join us for a rare opportunity to learn about NF2 and emerging treatments from world-renowned experts, including Dr. Gareth Evans (Manchester UK), Dr. Friedman (Vancouver, BC) and Jennifer Gait (Victoria, BC).</p>
<h3>CANCELED DUE TO LACK OF INTEREST.</h3>
<p><span id="more-1217"></span></p>
<p>Friday, June 15th, 2012<br />
10 am to 3 pm<br />
University of BC, Fairmont Social Lounge</p>
<p><strong>Registration Info</strong><br />
Cost: $55 (a light lunch will be provided)</p>
<p>Registration is required to ensure we appropriately meet catering needs.<br />
Accommodation for out-of-town visitors is available at reasonable rates on the University campus.<br />
Limited travel stipends are available.</p>
<p><strong><a href='/wp-content/uploads/BCNF-NF2-InfoDay-Leaflet-Web.pdf'>Download the information brochure and registration form.</a></strong></p>
<p>Please contact the BCNF office for further details at 1-800-385-2263 or <a href="mailto:info@bcnf.bc.ca" title="email us">email us</a>.</p>
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		<title>Slider &#8211; Tea Party</title>
		<link>http://www.bcnf.bc.ca/home-page-slider/slider-tea-party/</link>
		<comments>http://www.bcnf.bc.ca/home-page-slider/slider-tea-party/#comments</comments>
		<pubDate>Thu, 03 May 2012 00:11:24 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[Home Page Slider]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1232</guid>
		<description><![CDATA[May is NF Awareness Month! Help us create awareness and raise funds for research by hosting a Tea Party. We supply the posters, invitations, donation cards, and tea! Just send us an email and we’ll send you a Tea Party Kit.]]></description>
			<content:encoded><![CDATA[<h2>May is NF Awareness Month!</h2>
<p><strong>Help us create awareness and raise funds for research by hosting a Tea Party.</strong> </p>
<p>We supply the posters, invitations, donation cards, and tea! Just send us an email and we’ll send you a Tea Party Kit.</p>
<p><a href="/news/may-is-nf-awareness-month/"><img src="/wp-content/uploads/Camp-Link-Button.png" alt="Request More Info" title="Request More Info" width="250" height="46" class="alignleft size-full wp-image-617" /></a></p>
]]></content:encoded>
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		</item>
		<item>
		<title>May is NF Awareness Month!</title>
		<link>http://www.bcnf.bc.ca/news/may-is-nf-awareness-month/</link>
		<comments>http://www.bcnf.bc.ca/news/may-is-nf-awareness-month/#comments</comments>
		<pubDate>Thu, 03 May 2012 00:07:43 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Fundraising]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1229</guid>
		<description><![CDATA[Help us create awareness and raise funds for research by hosting a Tea Party! This is a great way to treat your friends, family and colleagues to tea and increase the profile of NF. We need to let the community know that NF is a disorder which affects over 10,000 Canadians and needs support and [...]]]></description>
			<content:encoded><![CDATA[<p><strong>Help us create awareness and raise funds for research by hosting a Tea Party!</strong></p>
<p>This is a great way to treat your friends, family and colleagues to tea and increase the profile of NF. We need to let the community know that NF is a disorder which affects over 10,000 Canadians and needs support and funding!</p>
<p>If you’d like to host a tea party we have all the supplies. Posters, invites, donation cards, and we will also send you the tea! Just send us an email and we’ll send you a Tea Party Kit. Then all you have to do is put the kettle and invite your friends over.</p>
<p>It’s that easy to make a difference!<br />
Contact us at <a href="mailto:info@bcnf.bc.ca">info@bcnf.bc.ca</a> today!</p>
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		<title>Survey: Young Peoples’ Experiences of Neurofibromatosis Type 1</title>
		<link>http://www.bcnf.bc.ca/news/survey-young-peoples-experiences-of-neurofibromatosis-type-1/</link>
		<comments>http://www.bcnf.bc.ca/news/survey-young-peoples-experiences-of-neurofibromatosis-type-1/#comments</comments>
		<pubDate>Thu, 26 Apr 2012 16:30:58 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1224</guid>
		<description><![CDATA[Do you have NF1 and are you aged 14-24? or Are you the parent of someone with NF1 who is 14-24? The University of the West of England (Bristol) is looking for participants to take part in a brief online survey. For more information and to access the online survey please use one of the [...]]]></description>
			<content:encoded><![CDATA[<p>Do you have NF1 and are you aged 14-24? or Are you the parent of someone with NF1 who is 14-24?<span id="more-1224"></span></p>
<p>The University of the West of England (Bristol) is looking for participants to take part in a brief online survey.</p>
<p>For more information and to access the online survey please use one of the following links:<br />
<a href="http://www.tinyurl.com/NF1parents" title="Parent Survey" target="_blank">Survey for parents</a><br />
<a href="http://www.tinyurl.com/NF1yp" title="Young people survey" target="_blank">Survey for young people with NF1</a></p>
<p><a href='/wp-content/uploads/80182-Postcard.pdf'>Download the invitation postcard</a></p>
<p>This survey is not affiliated with or endorsed by BCNF. For more information, please contact:<br />
Jenny Barke, Centre for Appearance Research<br />
University of the West of England,<br />
Coldharbour Lane, Bristol BS16 1QY<br />
E-mail: <a href="mailto:jenny.barke@uwe.ac.uk">jenny.barke@uwe.ac.uk</a></p>
]]></content:encoded>
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		<title>2012 Raffle</title>
		<link>http://www.bcnf.bc.ca/news/2012-raffle/</link>
		<comments>http://www.bcnf.bc.ca/news/2012-raffle/#comments</comments>
		<pubDate>Mon, 19 Mar 2012 08:54:55 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Raffle]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1017</guid>
		<description><![CDATA[2012 Raffle Update! Thank you to everyone who purchased ticket for the BCNF raffle. The winners of this year’s raffle are: 1st Prize, Cruise for 2: Carmen Gelderblom, Nanaimo (pictured) 2nd Place, TV: Janice McKenzie, Westbank 3rd Place, Keg gift card: Lisa Lundquist, Kelowna All funds generated will be used for our education, outreach and [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://www.bcnf.bc.ca/wp-content/uploads/Raffle-Winners-2012-222x300.jpg" alt="Our 2012 Raffle Winners" title="Raffle-Winners-2012" width="222" height="300" class="alignright size-medium wp-image-1212" /><strong>2012 Raffle Update!</strong> </p>
<p>Thank you to everyone who purchased ticket for the BCNF raffle. The winners of this year’s raffle are:</p>
<ul>
<li><strong>1st Prize, Cruise for 2</strong>: Carmen Gelderblom, Nanaimo (pictured)</li>
<li><strong>2nd Place, TV</strong>: Janice McKenzie, Westbank</li>
<li><strong>3rd Place, Keg gift card</strong>: Lisa Lundquist, Kelowna</li>
</ul>
<p>All funds generated will be used for our education, outreach and youth programs. We appreciate your support of this fundraising initiative.</p>
]]></content:encoded>
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		<title>NF Cartoon</title>
		<link>http://www.bcnf.bc.ca/inspiration/nf-cartoon/</link>
		<comments>http://www.bcnf.bc.ca/inspiration/nf-cartoon/#comments</comments>
		<pubDate>Tue, 13 Mar 2012 01:43:13 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[Inspiration]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1096</guid>
		<description><![CDATA[This cartoon comes to us from cartoonist Fabio Coala of Portugal. The translation might not be perfect, but the sentiment certainly is – enjoy!]]></description>
			<content:encoded><![CDATA[<p>This cartoon comes to us from cartoonist <a href="http://www.mentirinhas.com.br/anjos" title="Fabio Coala's website" target="_blank">Fabio Coala of Portugal</a>. The translation might not be perfect, but the sentiment certainly is – enjoy!<span id="more-1096"></span></p>
<p><a href="http://www.mentirinhas.com.br/anjos"><img src="/wp-content/uploads/angels-resized1.jpg" alt="NF Cartoon by Fabio Coala" title="NF Cartoon (Angels) by Fabio Coala" width="625" height="1866" class="alignnone size-full wp-image-1100" /></a></p>
]]></content:encoded>
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		<item>
		<title>BCNF NF1 Webinar Follow-Up</title>
		<link>http://www.bcnf.bc.ca/events/the-first-bcnf-nf1-webinar/</link>
		<comments>http://www.bcnf.bc.ca/events/the-first-bcnf-nf1-webinar/#comments</comments>
		<pubDate>Mon, 12 Mar 2012 17:40:51 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[Events]]></category>
		<category><![CDATA[Webinars]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1068</guid>
		<description><![CDATA[Thank you to our presenter Dr. Jan Friedman and our participants for joining in on the BCNF’s first webinar. Dr. Friedman’s presentation presented some great new research information along with the results of their research of using full body MRIs in NF1 If you weren’t able to join us for the seminar you can view [...]]]></description>
			<content:encoded><![CDATA[<p>Thank you to our presenter Dr. Jan Friedman and our participants for joining in on the BCNF’s first webinar.</p>
<p>Dr. Friedman’s presentation presented some great new research information along with the results of their research of using full body MRIs in NF1 If you weren’t able to join us for the seminar you can <a href="http://www.anymeeting.com/bcnf/EA53D781894F" title="View a recording of the complete webinar" target="_blank">view the webinar here</a>.</p>
<p><em><strong>Please note: </strong>The company that hosted the webinar is aware that Dr. Friedman’s screen sharing is not showing during the recording playback and their development team is working on this to resolve the issue as fast as possible.</em></p>
]]></content:encoded>
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		<title>Volunteers Needed for Thrifty Foods Coin Program</title>
		<link>http://www.bcnf.bc.ca/all/volunteers-needed-for-thrifty-foods-coin-program/</link>
		<comments>http://www.bcnf.bc.ca/all/volunteers-needed-for-thrifty-foods-coin-program/#comments</comments>
		<pubDate>Tue, 28 Feb 2012 18:30:12 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[Help Needed]]></category>
		<category><![CDATA[Volunteering]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1082</guid>
		<description><![CDATA[Volunteers Needed for a few hours in May. This May, the BCNF coin collection cans will be in all the Thrifty Foods through British Columbia with the goal of raising funds and awareness. We really need some help getting the cans into the stores. If there is a store in your neighbourhood and would you [...]]]></description>
			<content:encoded><![CDATA[<p><strong>Volunteers Needed for a few hours in May.</strong> This May, the BCNF coin collection cans will be in all the Thrifty Foods through British Columbia with the goal of raising funds and awareness. We really need some help getting the cans into the stores. <span id="more-1082"></span></p>
<p>If there is a store in your neighbourhood and would you be willing to drop off the cans on or near May 1st, and then pick them up at the end of the month, we’d love to hear from you! Volunteers are need for North Vancouver, Delta, Coquitlam, Surrey, New Westminster, Abbotsford, Nanaimo, Courtney, Campbell River, and Saltspring Island. It is a simple task involving very little time but would make a huge difference . Please let us know if you are keen to help!</p>
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		<title>Free Skate with Canucks Star Mason Raymond</title>
		<link>http://www.bcnf.bc.ca/events/free-skate-with-canucks-star-raymond-mason/</link>
		<comments>http://www.bcnf.bc.ca/events/free-skate-with-canucks-star-raymond-mason/#comments</comments>
		<pubDate>Tue, 28 Feb 2012 17:59:04 +0000</pubDate>
		<dc:creator>BCNF</dc:creator>
				<category><![CDATA[All]]></category>
		<category><![CDATA[Events]]></category>

		<guid isPermaLink="false">http://www.bcnf.bc.ca/?p=1072</guid>
		<description><![CDATA[On Monday, March 5th, Scotiabank will be kicking off its Vancouver Charity Challenge and BCNF is thrilled to be involved as a partner this year! Join us for the kick-off from 1:30 to 4pm at the Richmond Olympic Oval located at 6111 River Road in Richmond. Mason Raymond will be joining the event for a [...]]]></description>
			<content:encoded><![CDATA[<p>On Monday, March 5th, Scotiabank will be kicking off its Vancouver Charity Challenge and BCNF is thrilled to be involved as a partner this year!<span id="more-1072"></span></p>
<p>Join us for the kick-off from 1:30 to 4pm at the Richmond Olympic Oval located at 6111 River Road in  Richmond. Mason Raymond will be joining the event for a free skate. Complimentary skates are available onsite. There is plenty of onsite parking available and the hourly rate is $1.00 per hour.</p>
<p>Time permitting, Mason will be spending time at the end of the session signing autographs and posing for photos. You are welcome to bring jerseys, photographs, and other items for him to sign.</p>
<p>Please let us know if you are planning to attend so we can ensure we have enough t-shirts for everyone! This will also be a great opportunity with lots of media in attendance to create awareness for NF. Hope you can join us!</p>
<p><iframe width="640" height="480" frameborder="0" scrolling="no" marginheight="0" marginwidth="0" src="http://maps.google.ca/maps?q=Richmond+Olympic+Oval+6111+River+Road+Richmond,+BC+V7C+0A2&amp;hl=en&amp;safe=off&amp;fb=1&amp;gl=ca&amp;hq=Richmond+Olympic+Oval+6111+River+Road+Richmond,+BC+V7C+0A2&amp;hnear=Richmond+Olympic+Oval+6111+River+Road+Richmond,+BC+V7C+0A2&amp;cid=0,0,9131376278571019610&amp;t=m&amp;ie=UTF8&amp;ll=49.175139,-123.151546&amp;spn=0.013467,0.027466&amp;z=15&amp;iwloc=A&amp;output=embed"></iframe><br /><small><a href="http://maps.google.ca/maps?q=Richmond+Olympic+Oval+6111+River+Road+Richmond,+BC+V7C+0A2&amp;hl=en&amp;safe=off&amp;fb=1&amp;gl=ca&amp;hq=Richmond+Olympic+Oval+6111+River+Road+Richmond,+BC+V7C+0A2&amp;hnear=Richmond+Olympic+Oval+6111+River+Road+Richmond,+BC+V7C+0A2&amp;cid=0,0,9131376278571019610&amp;t=m&amp;ie=UTF8&amp;ll=49.175139,-123.151546&amp;spn=0.013467,0.027466&amp;z=15&amp;iwloc=A&amp;source=embed" style="color:#0000FF;text-align:left">View Larger Map</a></small></p>
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