Congratulation to our team of esteemed NF researchers who had their research published in theAmerican Journal of Medical Genetics Part A and many thanks to all the BC families who took part in the study.

Article link (Signup required)

This summer share your story and WIN!

Are you an aspiring author or filmmaker? Then its time to get busy.

The BCNF’s Summer Writing/Video contest has opened and we are excited to receive your work.

The goal of the contest is to inspire the sharing of experiences, improve communications in the NF community, and provide recognition of our authors and filmmakers. The contest is open globally – age is of no matter and entries must be in English. Continue Reading →

The BCNF and founder Paul Ralphs were recently featured in the Oak Bay News.

Read the paper online (page 3) or download the PDF.

Thank you!

Thank you to all our donors and guests for supporting the 16th annual Jeans for Genes Dinner and Auction on March 9th. With the help of Ed Bain from 100.3 The Q and the professional auctioneer services of Scott Meliville, from the Melville Group, vital funds were raised for summer camp scholarships and other programs. We thank all our donors and supporters and ask that you support them by visiting their businesses. Continue Reading →

Dear Friends,

I would like to wish you a Happy New year and hope 2013 finds you well. It is hard to believe another year is upon us. It is always interesting to reflect on the previous year and then look forward to our hopes and dreams of 2013. The BCNF board has been doing that. We have many new and ongoing projects that, if successful, will help BCNF move forward.

I would like to let our membership, supporters and friends know that we continue to do what we can do to support families touched by NF. Whether its providing information over the phone, sending the youth to camp, or just providing an ear to listen to a family in distress, we are here. These vital services that we offer however, do come at a price. Continue Reading →

Full and Partial Tuition and Travel Scholarships are now available
Saturday, July 13 – Friday, July 19, 2013

Come join us for a week of fun, friends and shared experiences at the annual Children’s Tumor Foundation’s Summer Camp in Emigration Canyon, Utah, just outside Salt Lake City. The camp, a state-of-the-art facility catering to those with special needs, provides a wide array of recreational facilities on-site, and can accommodate all ages and abilities. Continue Reading →

If you’re looking to buy or sell real estate in Canada, your sale or purchase can generate a large donation for the BCNF, at no cost to you. Continue Reading →

NBC’s TODAY Show recently ran a story about Blake Robinson, an 11-year-old with NF, and his involvement with Racing4Research. Watch the video.

NF Canada has published a book that sheds light on the intimate struggle of living with neurofibromatosis. Disgruntled Body, a book translated from an original French text, Corps chagrin, chronicles the journey of Vivianne as she battles the disorder neurofibromatosis type 1. Continue Reading →

We are so pleased to share the news that BCNF board member and medical student Suzana Mitrovic Gilmour has been awarded the 2011 Patricia Baird Prize.

The award is given to a medical student involved in the field of genetics. Suzana won the prize for her worthy contributions to the Foundation during medical school. Over the last three years Suzana has been involved in many projects at the BCNF, most notably in assisting with the production of the Support Through Technology online videos. Suzana is currently also working on a downloadable GP Fact Sheet that families can take to their doctor which outlines the management of NF.

Thanks, Suzana, for all your contributions to the NF community!

Want to support the BCNF in your own community? Then why not take to the streets and host a fun, family friendly fundraising event, the new Walk for NF. A guide to organizing a walk is available to make the event easy to implement and you will be supported through the process by the staff.

Money raised will be used to support NF research and provide services to support those battling NF, and their families. If you want to learn more, contact the office today and we will send you a complete kit to hosting a walk in your community.

By Desirée Sher.

The power of a group of people working together always inspires me. And in the first week of October in Ottawa I was inspired and awed by this strength.With funding in part from the Canadian Organization for Rare Disorders (CORD), I was able to take part in an Action Day for rare disorders on Parliament Hill. Continue Reading →