You wanted a NF clinic, and the BCNF is making it happen!
BCNF supporters like you have raised $90,000 towards a clinic in BC!
We are so close to our goal and invite you to make a contribution to be a part of this legacy. Help us launch the NF clinic in 2017 by making a donation today.
Every year, hundreds of families in crisis ask us, “Where is the NF clinic?”. We are done telling you there is no NF clinic caring for the children and adults battling neurofibromatosis – because together we are about to change that.
The BCNF has strong physician support for the NF clinic. Last month, the BCNF brought together some of the leaders in NF research and medical care to start work on developing the clinic model.
“The time is right. There are research and clinical trials and new therapies that are happening, and our patients in BC can’t access them because there is no clinic.”
Dr. Jan Friedman, Professor of Medical Genetics, University of British Columbia
The BCNF believes that with passion and perseverance – coupled with your financial support – we can make the dream of a clinic a reality in 2017.
Please say YES! to improved care for the children and adults affected with NF and make a donation today. Together, we can make a difference.
Wishing you a safe and healthy holiday season.
The British Columbia Neurofibromatosis Foundation (BCNF) is a registered, non-profit, charitable organization. It was established in 1984 to respond to the needs of individuals with neurofibromatosis (NF), their families, related health care professionals and other interested community members. The BCNF continues its work today through the efforts of its Board of directors, part-time staff, volunteers and membership.
NF encompasses a set of distinct genetic disorders (NF1, NF2 and Schwannomatosis) that cause tumours to grow along nerves and can affect the development of non-nervous tissues such as bones and skin. NF causes tumors to grow anywhere on or in the body and can also cause additional complications such as disfigurement, bone deformities and learning disabilities.
NF is more common than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined.
The NF Symposium is a patient and family educational event open to all people living with NF and their families, and interested community professionals. Attendees will learn about the latest medical advancements in neurofibromatosis, get practical advice on NF-related issues, and learn about increasing their overall health and life.