The British Columbia Neurofibromatosis Foundation (BCNF) is a registered, non-profit, charitable organization. It was established in 1984 to respond to the needs of individuals with neurofibromatosis (NF), their families, related health care professionals and other interested community members. The BCNF continues its work today through the efforts of its Board of directors, part-time staff, volunteers and membership.
WHAT IS NF?
NF encompasses a set of distinct genetic disorders (NF1, NF2 and Schwannomatosis) that cause tumours to grow along nerves and can affect the development of non-nervous tissues such as bones and skin. NF causes tumors to grow anywhere on or in the body and can also cause additional complications such as disfigurement, bone deformities and learning disabilities.
NF is more common than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined.